Help with getting back to health

19 replies [Last post]
cynfully2's picture
Offline
Joined: 2011-10-12

Pet Profiles

Hi All:

I am struggling a bit these days with fear due to my recent illness. I have been home from work now for over 3 weeks and am so very weak from the lack of activity. Does anyone have any suggestions on how to regain your strength. I know it takes time but walking one block is tiring me out add in the fact that I have increased anxiety because of all this I am just feeling really depressed. While I know that I am blessed that my condition is controllable with medication I am still left feeling blah...

 

Any help or suggestions for the unfurry? You guys are my outlet these days to keep my active.

Cyndy

Happydance's picture
Offline
Joined: 2010-11-14

Pet Profiles

Could you maybe do a lttle gardening?  Plant some flowers, they'll make you feel better!  I've been wanting to get a bicycle.  I used to run everyday plus having very active physical jobs and they certainly took their toll on my joints and feet so I sure understand about getting exercise and being in pain.  I hope you're feeling better soon.

Lady Kate's picture
Offline
Joined: 2009-10-28

Pet Profiles

Cynthia.. so so sorry you've got the blahs.. HATE them... Be gentle with yourself.. Your body might be telling you something ( like WHOA!!) take the time you need to feel better mentally and the physical will come. Do you have access to a swimming pool? Sometimes just floating in water can be very therapeutic. If no pool, try a bubble bath.

Don't forget to get yourself some blossoms.. nothing like flowers to lift your spirits and music.. music can really help..

Last but not least.. try some volunteer work.. that always was a 'quick fix' for me.. Just when I was feeling especially sorry for myself, doing something for someone in worse straits than I, was a jolt and got me back on the path.

Keep us posted.. venting here is always good. You'll find you're not alone and sometimes that is an amazing thing to realize.

Smooch you!

Tayoh and I's picture
Offline
Joined: 2011-11-08

As far as regaining your strength, take it one day at a time. Have you ever tried yoga? If not, you should try some of the beginner stuff. That's what my doctor always recommends to help build your strength back up a little (I have scoliosis- we were trying to strengthen up a little, I couldn't hardly walk from my house to the mailbox without getting a headache and my spine yelling at me to lay down). If you like to walk, do it slowly. Only go for a couple minutes at a time- start off once a day, then you can increase it when you're doing good. (:

cynfully2's picture
Offline
Joined: 2011-10-12

Pet Profiles

Oh guys thank you so much, I am starting to feel that I am just useless! I will start trying yoga for beginners, will look up some techniques. I wish I could do gardening but it is still just awful here in Chicago soon though the weather should break. I will just take it slow. Thanks you all are great!

cynfully2's picture
Offline
Joined: 2011-10-12

Pet Profiles

Oh guys thank you so much, I am starting to feel that I am just useless! I will start trying yoga for beginners, will look up some techniques. I wish I could do gardening but it is still just awful here in Chicago soon though the weather should break. I will just take it slow. Thanks you all are great!

HarleyBear's picture
Offline
Joined: 2011-08-17

Pet Profiles

I love the yoga idea.  There is just something so relaxing about stretching and focusing on breath.  No need to join a fancy yoga studio (although you could) a beginners DVD is all you need.  

Keep breathing and taking one step at a time.

cynfully2's picture
Offline
Joined: 2011-10-12

Pet Profiles

Looked up some videos on meditation and yoga will follow through on this.

Kate no pool but really want that bubble bath unfortunately had catherization procedure (I do not recommend it, it sucks big time) so cannot soak yet, but how I wish I could.

Its hard to slow down this much, I mean the past couple weeks I could do nothing after taking my meds but lay there and stare and feel all the side effects it caused and they were numerous. Finally starting to work through it. My fear is that if I do too much I will have a heart attack or stroke scares me to no end. I went into the hospital because my heart rate was out of control as well as blood pressure. Even now it starts racing on any activity but no where as bad as that first night.  I see a cardiologist tomorrow to review all my tests and whether there should be more so hoping for the best.

I know there are quite a few here with illness some much more serious than mine and wanted to see how you work through them.

Tayoh and I's picture
Offline
Joined: 2011-11-08

I love yoga. You can get it on DVD, in books, internet.. My favorite is dvds.

talisin's picture
Offline
Joined: 2011-02-25

I love yoga and pilates too.....to regain strength you could try using cans of vegetables and just lifting them while sitting around watching TV or relaxing, the only part of that exercise you need to know is that you want your wrists to remain straight do not flex them you want to build your arm strength and as your arms get stronger you will too. This is one of the exercises that my mom is having to do to rebuild her strength.....I know the fear you have of too much activity causing a heart attack I had that fear too, learn to breathe properly and move into adding more weight and more walking as you can any little bit you can do will be more than not doing....those exercise bands with handles are great I just got some for my mom they came in a 5 pack with 2 lb increments of weight there is one band that is 2lbs. one that is 4lbs one 6lb one 8lb and one 10lb start with the 2lb one and build up there are great dvd's for "sit and be fit" you can find the bands and dvd's on amazon.com for a very affordable price.....

good luck and keep us posted on your progress.....

Tannaidhe's picture
Offline
Joined: 2013-02-25

One thing that sounds odd but I found very helpful was, of all things, belly dancing.  I am neither good enough nor body-confident enough to do it in front of others (anymore >.>) but it's very helpful with basic stamina, and if you struggle with stiffness and/or joint pain, it's amazing.  They have 'belly dance for fitness' type videos, or if you can find a local troupe to learn with/from that's even better.  :)

Lady Kate's picture
Offline
Joined: 2009-10-28

Pet Profiles

I will be starting Stem Cell treatment on June 3. ( waiting for the weather to get warmer as the success rate is so much better)

I've got bone on bone knees ( all those tacky three inch heels and dancing till dawn did me in I guess LOL) and scoliosis that puts pressure on my sciatica. I can walk a block and stand up for twenty mns.. but that's my limit and I know it, so I just sit and let things settle for a bit then I'm good for another little while.

The stem cells will re-grow the cartilage and although my spine will never be straight, the pain will diminish. Doc suggested swimming and an inverter board to help with the muscles surrounding my spine.

I am so blessed to be living in Mexico where this therapy is available and affordable. Prayed for a miracle as I sure didn't want to go through invasive surgery and total knee replacements; and this doc landed in my lap!

HarleyBear's picture
Offline
Joined: 2011-08-17

Pet Profiles

Oh Lady Kate, I didn't know it was your knees!  I have the same problem starting to develop.  My patella doesn't track properly, so it is wearing all the cartilage in my knee down.  It is starting to sound crunchy.  I am trying SO hard to build up muscle around my knee to support it and get the patella tracking properly, but so far nothing. 

It is wonderful to know that the miracles of science are working for you.   Hopefully, by the time I need the same procedure it will be available here in the states at an affordable price.

cynfully2's picture
Offline
Joined: 2011-10-12

Pet Profiles

Well I'm back from cardiologist : ( I have dilated cardiomyopathy, basically weakend heart muscle and enlarged heart. I am totally bummed by the news but at least it has a name now. Anyone have any experience with this? 

Kate hope all works out with stem cells, that would be wonderful if it could cure your knees, wich it could work on my heart...

HarleyBear's picture
Offline
Joined: 2011-08-17

Pet Profiles

Oh Cyndy, I am sorry to hear that.  But you are right, now it has a name and you can look at it square in the eyes.  

You have come to the right place because we will all be here to help and support you anyway we can.  DCM is actually a very common disease for dobermans too.  Although obviously we are built differently than dogs, you might find a lot of people who can at least relate.

talisin's picture
Offline
Joined: 2011-02-25

OH WOW, I am so sorry to hear this but again it has a name and that helps a ton.....I will add you to my list of prayers, here's hoping that you find comfort in some of the info that you read, be sure to share with us what you learn and how you need to proceed......

Joined: 2012-10-28

Pet Profiles

My best wishes to you my dear new friends.

 I hope we all can overcome pain and get going better again.

Its great to know we all care about each other.

 :)

 

Julia

Lady Kate's picture
Offline
Joined: 2009-10-28

Pet Profiles

I think Cynthia, not knowing is the worst thing in the world.. and yes..now that 'IT' has a name, you'll know how to treat 'IT'.

I can only imagine how scary this is right now,and I'm just so sad for this news. However, I'm hoping you'll research all you can; in fact even your cardio-guy..there are lots and lots of docs and if you don't love this one.. find one you do!!

 A treatment plan will go in place and before you know it.. "IT" will just be a word and one you deal with like the warrior you are.

Many prayers for you quierda!!

chris b.'s picture
Offline
Joined: 2011-01-20

Cyndy, When my husband was on chemo that made him very weak the Drs. wanted him to do laps inside the house.  Nice and safe, always somewhere to lean if you have to.  I would walk with him in the evening, we would do each room...very short walks, livingroom, kitchen, 2 bedrooms. When the weather warms up, just out into the yard.  Don't try to do a block yet, that would be a goal for the future.  Sorry to hear about the DCM, listen to your Drs., they can do so much now.  Do you have a treatment plan yet?  Keep us posted.

(((hugs)))

Chris

cynfully2's picture
Offline
Joined: 2011-10-12

Pet Profiles

Thanks everyone for your thoughts and prayers. I have a cardiologist that I like so far, he tells me we will be great friends and will be seeing a lot of each other. I told him he does not know the half of it, I will be calling upon him on many occasions if not feeling well. My prognosis on medication look good. I have done much research, so much so that my mom has forbidden me to look at any more info, she also took away my BP monitor for obssessive behavior. I have found so many people with the same disease with a much lower % than my own and they are doing fine. Just FYI I learned that normal heart muscle should be 50-70%, mine is close to 40% others I've found at 10-20% have increased theirs over time and live normally. This illness can pop up out of no where and its causes are not quite known but some thoughts are an infection, family history or unknown.

I am trying to keep my spirits up, my doc told me to go back to work so I will be trying this next week most likely will be driven in and picked up until I can do it on my own. I won't give up, of course I have been prone to crying a lot lately which is truly not my thing but is needed sometimes.

Thank you all for your kindness and keep the prayers coming.